While congenital limb deficiencies like extra fingers or under-grown extremities aren't uncommon in newborns, FATCO syndrome occurs in less than one out of every 1 million births (via Orphanet). There is little information on how the syndrome is treated, but usually, surgery and amputations are used to help better the quality of the child's life.
Maddie revealed that because Evangalynn is still very young, the family will have to wait before they can start any kind of treatment or surgeries until she turns 1 year old. By then, her body will be more developed and the parents can decide on the next steps in the baby's treatments. "How will she be at 70 years old? Will this come back and haunt her? There's still a lot of unknowns, which is hard," Brown Brush explained.
Maddie did open up in a recent Instagram post about the situation, saying, "This is one of the hardest things that Caleb and I have gone through and the decision to share almost as difficult, but after a lot of consideration, we realized that it's the best thing for our daughter and there is a chance it may help other parents who may also be struggling..."
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